Surviving Hepatitis C in AZ Jails, State Prisons, and Federal Detention Centers.

Surviving Hepatitis C in AZ Jails, State Prisons, and Federal Detention Centers.
The "Hard Time" blogspot is a volunteer-run site for the political organization of people with Hepatitis C behind and beyond prison walls, their loved ones, and whomever cares to join us. We are neither legal nor medical professionals. Some of us may organize for support, but this site is primarily dedicated to education and activism; we are fighting for prevention, detection, treatment, and a cure for Hepatitis C, particularly down in the trenches where most people are dying - in prison or on the street... Join us.

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Showing posts with label budget. Show all posts
Showing posts with label budget. Show all posts

Thursday, February 10, 2011

Oprah: Fight for Life in AZ.




This item below comes via Julie from a friend of hers. Here's the "suggestions" link for Oprah, and Linda's letter as an example of how to try to get her here and turn up the heat, so to speak.
The folks at Harpo Productions may not pay attention to just one of these, but I bet if a few along these lines reached them they'd start to notice (especially if they got some from children, with drawings and crayon).


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Dear Miss Oprah,

I am writing to you on behalf of the 96 people in Arizona (2 have already deceased) who were originally approved for organ transplant operations under our State’s Medicaid program called AHCCCS (Access). In August 2010 the Governor, Jan Brewer, informed them all that due to budget constraints the State would no longer offer coverage for these life saving medical procedures.

Since August, our Governor has been presented with several different scenarios and ideas on how to balance the budget without cutting the organ transplant funding. To date she has refused to compromise in any way and says she is making “hard choices in tough economic times”.

I can simply no longer sit around and do nothing! Denying Medicaid patient’s organ transplants is a death sentence. These people do not have time on their side to “ride it out” through our budget crisis. Organ transplants are their ONLY option for living.

I am not asking you for a handout or to fund any transplant procedures. All I am asking is that you devote some time, in one of your shows, to bring national/global attention to the plight of these people in Arizona. I do believe that with enough public attention being drawn to this issue the Governor will be forced to restore the funding out of the sheer protest by the masses. Most Americans do not even realize what is happening in Arizona. Death panels are a reality in this state!

I respectfully request that you please give serious consideration to my request. I will ensure that you have access to the FACTS of this serious matter in AZ. I will also be able to introduce you to the patients who have been denied coverage so that you can personally hear their individual stories. I also have several State representatives who would to happy to discuss this issue with you.

Thank you for your time and consideration.


Sincerely,


Linda Gallie

Phoenix, Arizona

Sunday, January 30, 2011

The Tea Party Legislature now in Session.

From Protecting Arizona's Family Coalition (PAFCO):


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AZ Legislature starts to heat up with many bills dropped and AHCCCS hearings next week.



· AHCCCS is scheduled for informational budget hearings on February 1 and February 2. No budget bills dropped yet for these hearings, but this preliminary hearings will outline the Governor’s budget proposals. Details and agenda are listed below.

· These are opportunities to be present, provide testimony, and show our opposition to the Governor’s budget proposals and clearly outline the type of transparency and accountability measures required when such critical decisions.

· The Governor’s proposals include eliminating 280,000 people from AHCCCS, resulting in the loss of thousands of high paying health care jobs, and crippling the health care system capacity --- potentially comprising the general health care system and cost shifting to private health care plans.

· Such monumental human, economic and health care system decisions must be vetted completely in the light of day with lots of citizen and expert input.

· The past week, a coalition of major health care provider organizations led by the Arizona Hospital and Health Care Association held an educational session with legislators laying out the human, economic and system costs of the Governor’s health care proposals. Clearly the Governor’s choices take a tremendous human and economic toll and must be rejected. For details on the Arizona Hospital Association analysis and study go to: http://www.azhha.org/advocacy/

· Alternatives exist, including a new proposal for raising revenue through a hospital bed tax and health care premium tax. Other alternatives include raising the beer and liquor tax to national average or eliminating tax exemptions and taxing various services. See the article below from ASU economist listed whose analysis indicates at this point revenue increases have a better economic impact that budget cuts. Arizona tax boost better than budget cuts, economist says (www.azcentral.com - http://www.azcentral.com/arizonarepublic/local/articles/2011/01/28/20110128arizona-budget-tax-boost.html?utm)_



AHCCCS BUDGET HEARINGS – FEBRUARY 1 IN THE SENATE AND FEBRUARY 2 IN THE HOUSE



· Tuesday February 1 at 2pm AHCCCS Budget hearing - State Senate Appropriations agenda http://www.azleg.gov/FormatDocument.asp?inDoc=/agendas/02010154102%2Edoc%2Ehtm . This presentation is first round presentation. No budget bill has been introduced.

· Here is link to AHCCCS budget presentation. http://www.azahcccs.gov/reporting/Downloads/Legislation/Presentations/1-12househealth.pdf

· Wednesday February 2 at 2pm AHCCCS Budget hearing – House Appropriations agenda --- http://www.azleg.gov/FormatDocument.asp?inDoc=/agendas/02020101102%2Edoc%2Ehtm




Children’s Action Alliance has released a detailed analysis: Read/download the user-friendly chart here and share with your colleagues.

As CAA comments: This budget --- also ignores the next funding cliff when the temporary state sales tax dollars go away - education and health care remain exposed to more major misery. The budget moves resources from the classroom to the prison cell and promises a weaker workforce. Large cuts are proposed for K-12 and universities, key elements in a sustainable economy, workforce, and reduction of poverty, hunger, homelessness, and family violence.

Monday, October 11, 2010

"Capitol Murder": When the state steals hope from the dying.

It's my understanding that last spring Governor Brewer's and the legislature's bean counters calculated that if they deny AHCCCS coverage for liver transplants, then 17 people on the waiting list will die within the year, saving the state all of about 2.5 million dollars. They probably made that decision with a list of the patients' names on their table. The rest of those waiting for livers will soon follow. Virtually all patients waiting for liver transplants are HCV survivors.

It's sad to say that our government chose to go that route instead of saving the same amount of money by releasing 500 non-violent offenders 6 months early. No one would have to die. Thank legislators Russ Pearce and John Kavanaugh, and Chuck Ryan at the Department of Corrections, for scaring everyone into thinking that ANY early prison releases would jeopardize public safety. In the meantime, sick and vulnerable people are dying in prison at astounding rates this year.

I guess this way, though, the independently wealthy and well-insured will have more livers to choose from once the poor are out of the picture. Frankly, that just makes me want to destroy my organ donor card. 

This policy should be criminal; it sure seems discriminatory and a violation of the Americans with Disabilities Act. As long as this legislature is making the laws, though, all but the elite are bound to be screwed - they cut everything from our school budgets to our health care, while protecting their own assets and preserving their own privileged way of life. 

We need to get the people who supported this out of office next month, or spend the next two years fighting and even harder battle with them. Failing that, we may need to just figure out a way to specify that our own organs are donated only to the poor, when the time comes. Then the state can either save our people from an unnecessarily horrible death, or face the wrath of the entire transplant community for letting good organs rot.


------------------From the National Viral Hepatitis Roundtable--------------

A controversial new policy by the Arizona Health Care Cost Containment System depriving hepatitis C patients coverage for liver transplants is effectively a death sentence that, left unchecked, could have far-reaching consequences for millions of Americans afflicted with chronic viral hepatitis, the National Viral Hepatitis Roundtable (NVHR) said today.   The new coverage exclusion governing liver transplants took effect Friday as part of broader Medicaid coverage changes made by the state of Arizona in response to budgetary pressures.  

"The Arizona Medicaid program's decision to deprive hepatitis C patients coverage for liver transplants is inhumane and will have devastating consequences for Arizona's Medicaid beneficiaries," said Ms. Lorren Sandt, NVHR Chair and Executive Director of Caring Ambassadors Program, based in Portland, Oregon .  "NVHR recognizes that both public and private health care programs are struggling with the burden of rising costs and a challenging economic environment.  However, the cruel costs associated with Arizona's Medicaid coverage changes do not appear to be based on sound science and far exceed any supposed benefit."

"The standard of care for centers and practitioners is to offer liver transplants to patients with hepatitis C.  All insurance providers – including state Medicaid programs – need to provide coverage for what is the standard of care. With new curative therapies on the horizon, it is imperative not to discriminate against patients with hepatitis C when selecting patients for a liver transplant," said Robert G. Gish, M.D., Co-Director Center for Hepatobiliary Disease and Abdominal Transplantation (CHAT), University of California, San Diego School of Medicine.  
 
Arizona Medicaid's transplant coverage exclusion is the first of its kind in the nation for hepatitis C patients.  NVHR is deeply troubled that the new Medicaid coverage exclusion inflicts catastrophic consequences that go far beyond any supposed savings.   According to news reports, Arizona faces a budgetary shortfall this year of as much as $825 million.  The entire package of Medicaid benefit changes, including the hepatitis C liver transplant exclusion, is expected to yield about $5 million in savings – or about 1/2 of one percent of the projected budgetary shortfall.

An estimated 5.3 million Americans have been infected with chronic viral hepatitis B or C – and with most unaware of their infection, millions are at risk of developing life-threatening complications, especially African Americans and Asian Americans. Without detection and prompt treatment, chronic viral hepatitis leads to liver cancer, cirrhosis, or liver failure.  

NVHR is a coalition of more than 170 public, private, and voluntary organizations dedicated to reducing the incidence of infection, morbidity, and mortality from chronic viral hepatitis that afflicts more than 5 million Americans. www.nvhr.org
 
SOURCE National Viral Hepatitis Roundtable