Surviving Hepatitis C in AZ Jails, State Prisons, and Federal Detention Centers.

Surviving Hepatitis C in AZ Jails, State Prisons, and Federal Detention Centers.
The "Hard Time" blogspot is a volunteer-run site for the political organization of people with Hepatitis C behind and beyond prison walls, their loved ones, and whomever cares to join us. We are neither legal nor medical professionals. Some of us may organize for support, but this site is primarily dedicated to education and activism; we are fighting for prevention, detection, treatment, and a cure for Hepatitis C, particularly down in the trenches where most people are dying - in prison or on the street... Join us.

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Friday, May 7, 2010

AZ: Killing us Softly.

It's seldom that the AZ Republic puts out an editorial worth posting, but Montini's on the ball with this one.This news does not bode well for prisoners with liver failure, of course, since they are at the bottom of the public's list of the "deserving" - as evidenced by Jamie Scott in Mississippi, for example. 

Of course, early and proper treatment could prevent the expense of transplants for many Hepatitis C patients, but since poor citizens are discarded so readily by this legislature, we are no doubt in for one heck of a fight as long as these lawmakers remain in power.

Happy Hepatitis Awareness Month, friends. 

Hang in there.
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Some budget cuts are death sentences

One of the strongest arguments for immigration reform is that Americans must take care of Americans first.

So why aren't we doing it?

Some of the best doctors in Arizona told state legislators that if they cut transplant services from the AHCCCS budget, hard-working Arizonans will die.
 
The legislators cut the services.

The doctors and the people who work with their patients tried a different tack, pointing out that the cost of keeping sick patients alive until they die is more expensive in the long run than providing transplant services.

The legislators cut the services.

The doctors were from University Medical Center, Banner Good Samaritan and the Mayo Clinic.
They laid out their case in coldly understandable terms, writing, for example:

"As of 19 April 2010, there are 51 AHCCCS patients on the liver transplant
wait list with Hepatitis C. Of those patients waiting, approximately 17 of those patients will die this year if transplantation is not a covered service. Based on the current average reimbursement rate for transplantation ($149,670), the estimated cost savings to AHCCCS will be $2,544,390."

That is the short-term saving.

It is difficult to determine the long-term cost to the state of caring for patients who slowly wither away. It could take years.

The doctors ran to same numbers for heart-transplant patients, lung-transplant patients, pancreas-transplant patients.

The legislators cut the services.

And Gov. Jan Brewer signed the bill into law, eliminating AHCCCS coverage for the operations.

Before all this occurred, I wrote a column about one of those patients, a man who has been receiving medical treatment under AHCCCS, Arizona's Medicaid program.

"I can't work anymore and we ran out of coverage a while back," he told me. "It's terrible needing help. It's not what I wanted. But when you run out of money, what can you do? If I don't get a transplant, I guess the state won't have to pay for me or worry about me until I walk into an emergency room close to dying. They can't turn me away then."

People like Charlie Thomas, a transplant social worker, have been dealing with the threat of these cuts for years, always managing to stave them off. Until this time.

This time, legislators needed a quick fix.

"The people who benefit from these transplant services are people who were working, paying taxes, being good citizens and then got sick and lost everything. They're us," Thomas told me.

Still, the services were cut.

The transplant physicians and hospitals are hoping they'll have a second chance to make their case before the new rules go into effect in July. Before people die who could otherwise be saved. They believe they have the scientific data and the economics on their side.

One of those hoping to get the Legislature to reconsider is Leo Corbett, a former state senator and one-time Republican candidate for governor who knows what it means to make tough budget decisions. He's also a heart-transplant recipient.

"I'm not sure that legislators got all the information they needed to make an informed decision," he told me. "It seemed to have been in the hands of the bean counters rather than the policy makers. I believe this can be resolved in a fiscally sound manner that still serves the need of these patients. I hope so, anyway. I believe, like a lot of people, that a society or a state is judged by how it treats its poor people. For most of these folks, the illness took all they had."

Reach Montini at 602-444-8978 or ed.montini@arizonarepublic.com.

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